Response from Founder and Executive Director of the National Center on Shaken-Baby Syndrome


The Twelfth International Conference on Shake Baby Syndrome/Abusive Head Trauma had 728 attendees and presenters.  These attendees represented 64 major hospitals, 16 universities, 49 of the 50 USA states, eight of 10 provinces in Canada; 14 countries; the US Army, US Air Force and US Marine Corps and 115 other participants representing state, federal, provincial or city governments and 48 members of SBS victim families.

The conference, over the past 16 years, has successfully presented a highly academic and scientific program.  It has additionally been able to include the families of some of the victims of SBS in a very respectful and meaningful way which has added to the value of the learning event.

I attended all keynote presentations and many of the conference workshops.  My staff and/or my board members jointly attended all the workshops.  None of these people heard or reported any of the comments or impressions of the statements you have described and listed for me.  Additionally we have now received hundreds of highly positive evaluations and none of those have indicated any of the problems or comments you have described.

The one exception is your reference to circularity being a challenge for shaken baby syndrome research.  Circularity is a challenge in any kind of clinical research and needs to be addressed in all clinical studies. Many excellent researchers in this field and others recognize this and address it appropriately.

The NCSBS taped sessions many years ago in a few of the first conferences and stopped doing it only because it was not cost effective.

I appreciate the opportunity to respond.

Sincerely,

Marilyn Barr

Founder and executive director, National Center on Shaken Baby Syndrome

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